Community-Engaged Research on Fibroids

Tell us about the research you conducted as a graduate student. What did your studies find?

My project investigated uterine fibroids, and I took a translational approach, which means using multiple types of investigations from lab experiments to patient interviews. Uterine fibroids are non-cancerous tumors that form in the uterus and can cause debilitating symptoms. Hysterectomy — the surgical removal of the uterus — is the only treatment that provides complete symptom resolution, so there’s great need for new, innovative treatments. My lab research aimed to identify a mechanistic pathway that causes uterine fibroids. I looked at fibroid samples and myometrial tissue (from the outer layer of the uterus) from patients who had undergone surgery, and I studied the cells using immunofluorescence staining.

Along with a need for treatments, there’s great need to address health disparities associated with fibroids. Black women have a higher risk for uterine fibroids, but little qualitative research has been done in this area. As a Latina, I was interested in my own population as well, which also has not been studied extensively. I used a community-engaged research approach with a community-based partner, The Fibroid Foundation, to interview Black women and Latinas diagnosed with uterine fibroids to discuss their menstruation and uterine fibroid journey.

My studies found that women of color felt ethno-racial factors affected their fibroid care, discussions with doctors and treatment decisions. The study supported the importance of culturally sensitive care and bias reduction in the treatment of uterine fibroids. Even if another uterine fibroid treatment becomes available, it’s important to acknowledge the other barriers patients face in their uterine fibroid care and to recognize that further research in this area requires an overall translational approach.

What opportunities at Mayo did you take advantage of to further your development as a scientist and your engagement with the community?

Throughout my Ph.D. training, I had to opportunity to work on multiple projects, including interviewing adolescent participants on the Mayo Clinic Pediatric Board, a group that gives input about care for kids. I also interviewed immigrant women in Olmsted County, Minnesota, and helped facilitate several community studies, such as one involving patients undergoing fertility care. I also participated in a workshop exploring and identifying what’s known as “hidden curriculum” in academic settings. Those are the unspoken cues — such as how to network effectively at a scientific conference — that all scientists need to know to advance their careers.

What other experiences made an impression on you?

I was involved in the Graduate School Association as a representative of the Initiative for Maximizing Student Development and as a representative of the Clinical and Translational Science graduate track. Working with the GSA provided an opportunity to share my experiences and guide new students as they start the Ph.D. journey.